Publications

    Elena Fagotto, Project on Transparency and Technology for Better Health, March 2019

    The Project on Transparency and Technology for Better Health was established to conduct comparative case studies on platforms that empower patients through information to provide an inventory and typology of initiatives. This case study takes a look at Breast Cancer Straight Talk Support, a closed Facebook community for women dealing with breast cancer and survivors. With hundreds of posts every day, the group is a safe space where women can vent about feeling scared, depressed, or lonely and receive support from women who “get them.” For many members, the group is a window into other women’s cancer journeys, which gives them perspective and a more proactive attitude to fight the disease. The community is also an important resource to ask questions on treatments, side effects, surgery and more.

    Elena Fagotto, Project on Transparency and Technology for Better Health, March 2019

    The Project on Transparency and Technology for Better Health was established to conduct comparative case studies on platforms that empower patients through information to provide an inventory and typology of initiatives. This case study takes a look at IBD Partners, a research network connecting nearly 15,500 IBD patients with over 300 researchers. Patients can contribute their self-reported health data for research by filling out surveys on their health twice a year. This way, patient-generated data feeds into an extensive database that can be accessed by researchers to conduct longitudinal studies, to connect with patients for clinical trials and for prospective studies. Patients can also use the platform to suggest research questions and vote for the most interesting ideas, generating a truly patient-driven research agenda.

    Elena Fagotto, Transparency and Technology for Better Health, March 2019

    The Project on Transparency and Technology for Better Health was established to conduct comparative case studies on platforms that empower patients through information to provide an inventory and typology of initiatives. This case study details ImproveCareNow (ICN), a network of clinicians, medical centers, patients, families and researchers working together to improve the lives of children with inflammatory bowel disease (IBD). 

    In summer and fall of 2014, thousands of individuals in Liberia, Sierra Leone, and Guinea contracted the Ebola virus. This outbreak of the deadly disease, which until then had been highly uncommon in West Africa, prompted a major (albeit delayed) public health response on the part of the international community, including an unprecedented commitment made by the United States, which sent almost 3,000 active military soldiers to Liberia. “Mission in Flux” focuses on the US military’s role in the Ebola response, emphasizing the Michigan National Guard’s eventual involvement. In particular, it provides readers with a first-hand account of the challenges the Michigan Guard faced as it prepared for and then deployed to Liberia, just as the crisis had begun to abate and federal officials in Washington began considering how to redefine the mission and footprint of Ebola-relief in West Africa.  
    Zhang, Siwen, Hua Chen, Songyu Zhu, Jorrit de Jong, and Guy Stuart. 2017. “Health Education in China's Factories: A Case of Embedded Education”. Read full paper Abstract

    Siwen Zhang, Hua Chen, Songyu Zhu, Jorrit de Jong, and Guy Stuart, January 2017 

    This case study focuses on HERhealth, the health education program within the HERproject as it was implemented in China from 2007 onwards . Based on reports supplied by BSR this case study documents the health education and its effects on the behavior of women who received the education in terms of improved reproductive health, personal hygiene, and safe sex practices.

    Wilson, Deloris, Linda Kaboolian, Jorrit de Jong, and Guy Stuart. 2017. “Barbershops and Preventative Health: A Case of Embedded Education”. Read full paper Abstract

    Deloris Wilson, Linda Kaboolian, Jorrit de Jong, and Guy Stuart, January 2017   

    This is a case study of the Colorado Black Health Collaborative (CBHC) Barbershop/Salon Health Outreach Program, a community-based initiative that targeted disproportionate rates of hypertension and other health problems within the African American community. 

     

    Zhang, Siwen, Hua Chen, Songyu Zhu, Jorrit de Jong, and Guy Stuart. 2017. “HIV/AIDS Prevention on Southern China's Road Projects: A Case of Embedded Education”. Read full paper Abstract

    Siwen Zhang, Hua Chen, Songyu Zhu, Jorrit de Jong, and Guy Stuart, January 2017  

    This is a case study of the Asia Development Bank (ADB)-sponsored HIV/AIDS prevention program implemented at expressway construction sites in Guangxi province from 2008 to 2015 . The program delivered HIV/AIDS prevention education to migrant workers working at the sites, as well as to members of the communities near the sites.

    This epilogue accompanies case number 2055.0. In September 2014, as several West African countries continued to battle a deadly outbreak of the Ebola virus, Dallas, Texas, emerged as ground zero for the disease in the U.S. This case recounts how, over the course of three days, Thomas Eric Duncan, who had recently arrived in the city from Liberia, reported twice to Dallas Presbyterian Hospital exhibiting signs of illness. Having sent him home after his first visit, the hospital admitted him after his second; and with his symptoms worsening rapidly, tests soon revealed everyone’s worst fear: he had Ebola. “Fears and Realities” describes how local, state, and federal public health authorities, along with elected officials and hospital administrators, responded to the alarming news – a hugely difficult task made all the more challenging by confusion over Duncan’s background and travel history, and, eventually, by the intense focus and considerable concern on the part of the media and public at large. Efforts to curtail the spread of the disease were further complicated when two nurses who had cared for Duncan also tested positive for Ebola, even though they apparently had followed CDC protocols when interacting with him. With three confirmed cases of the disease in Dallas – each patient with their own network of contacts – authorities scrambled to understand what was happening and to figure out a way to bring the crisis to an end before more people were exposed to the highly virulent disease.
    In September 2014, as several West African countries continued to battle a deadly outbreak of the Ebola virus, Dallas, Texas, emerged as ground zero for the disease in the U.S. This case recounts how, over the course of three days, Thomas Eric Duncan, who had recently arrived in the city from Liberia, reported twice to Dallas Presbyterian Hospital exhibiting signs of illness. Having sent him home after his first visit, the hospital admitted him after his second; and with his symptoms worsening rapidly, tests soon revealed everyone’s worst fear: he had Ebola. “Fears and Realities” describes how local, state, and federal public health authorities, along with elected officials and hospital administrators, responded to the alarming news – a hugely difficult task made all the more challenging by confusion over Duncan’s background and travel history, and, eventually, by the intense focus and considerable concern on the part of the media and public at large. Efforts to curtail the spread of the disease were further complicated when two nurses who had cared for Duncan also tested positive for Ebola, even though they apparently had followed CDC protocols when interacting with him. With three confirmed cases of the disease in Dallas – each patient with their own network of contacts – authorities scrambled to understand what was happening and to figure out a way to bring the crisis to an end before more people were exposed to the highly virulent disease.