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Join Elena Fagotto, Transparency Policy Project Director of Research, Ash Center; Archon Fung, Harvard Kennedy School Academic Dean, Winthrop Laflin McCormack Professor of Citizenship and Self-Government; and Jan Walker, Associate Professor of Medicine at Harvard Medical School, Research Faculty in the Division of General Medicine and Primary Care at Beth Israel Deaconess Medical Center, Co-Founder of OpenNotes, for a discussion about using technology to enable better transparency in patient health data.
Improvements in transparency and health information technology promise to empower patients to play a more active role in their health. Patients can share life hacks and tips on their condition by connecting with their peers in online communities. They can also track and share their health data with their physicians to inform care decisions. Patients donate their data to promote a patient-focused research agenda and play an active role in health care quality improvement networks. This unprecedented flow of health information and patient data may have created the perfect storm to empower patients and improve their health. The research of the Transparency and Technology for Better Health Initiative, funded by the Commonwealth Fund, examined eight innovative efforts to inform and engage patients to understand their commonalities, success, but also limitations. Elena Fagotto, Transparency Policy Project Director of Research, Ash Center; Archon Fung, Harvard Kennedy School Academic Dean, Winthrop Laflin McCormack Professor of Citizenship and Self-Government will discuss the initiative's findings and the challenges ahead. Jan Walker, co-founder of OpenNotes, will join them to reflect on the movement to open clinical notes to millions of patients and the latest efforts to engage patients as active producers of their health information.
The Transparency Policy Project studies the effectiveness of a broad array of disclosure systems designed to improve public health and safety, reduce risks to consumers, minimize corruption, and improve public services. The Project also explores the power and limits of technology to create collective knowledge that serves the public.
The Ash Community Speaker Series features discussions with students, faculty, fellows, and alumni whose research or other academic work is supported by the Ash Center. The series is a forum to discuss new ideas, innovative work, and ongoing projects that are related to the Ash Center's mission to make the world a better place by advancing excellence and innovation in governance and public policy through research, education, and public discussion.