Exchanging Information to Create a Learning Health System: The ImproveCareNow Approach to Engagement

Abstract:

Elena Fagotto, Transparency and Technology for Better Health, March 2019

The Project on Transparency and Technology for Better Health was established to conduct comparative case studies on platforms that empower patients through information to provide an inventory and typology of initiatives. This case study details ImproveCareNow (ICN), a network of clinicians, medical centers, patients, families and researchers working together to improve the lives of children with inflammatory bowel disease (IBD). 

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